Comments on: Confidentiality, Anonymity, Privacy http://www.mentalhealthcamp.org/confidentiality-anonymity-privacy/ Erasing Stigma and Exploring Possibilities with Social Media - Second Annnual Mental Health Camp (July 10, 2010, Vancouver, British Columbia Canada) Tue, 20 Jul 2010 02:25:22 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Sand http://www.mentalhealthcamp.org/confidentiality-anonymity-privacy/comment-page-1/#comment-249 Sand Tue, 21 Apr 2009 00:04:23 +0000 http://www.mentalhealthcamp.org/?p=77#comment-249 One idea: at registration, put colour coded stickers on people who don't want to be on camera. <abbr><em>Sand’s last blog post..<a href="http://feedproxy.google.com/~r/ChannelN-PodcastsPoweredByOdiogo/~3/Ndw-QuiD7Uc/creative-minds.html" rel="nofollow">Creative Minds</a></abbr></em> One idea: at registration, put colour coded stickers on people who don’t want to be on camera.

Sand’s last blog post..Creative Minds

]]> By: Keely Kolmes http://www.mentalhealthcamp.org/confidentiality-anonymity-privacy/comment-page-1/#comment-247 Keely Kolmes Mon, 20 Apr 2009 22:20:48 +0000 http://www.mentalhealthcamp.org/?p=77#comment-247 I actually lean more towards the assumption that comments and participation should be confidential. Perhaps I say this as a psychologist who wants my clients to be cautious and conservative about their own self-care. :) I recognize that the point of the conference is ending stigma, but I think it would be hard for many people to relax, share ideas, and get what they need from attending this conference if the default assumption is that all participation will be shared publicly on the net. I think it would be lovely if there were some easy way to easily "opt in," or "opt out," in terms of letting folks know how you feel about being quoted. Something along the lines of name tag color. Choosing to wear a red name tag would mean, "Do not quote me on the web at all." Green name tag could mean, "Please feel free to attach my name to any blogging you do about this panel." I suppose there could also be a Yellow name tag for, "Please check with me before you publish my name." This would also make it easy for people to opt in or opt out for different panels and topics and puts the power solely in their own hands to identify how they feel about it (assuming all play along). What do people think of this? <abbr><em>Keely Kolmes’s last blog post..<a href="http://drkkolmes.com/2009/04/11/social-networking-visibility-and-the-therapeutic-alliance-my-presentation-at-mental-health-camp-in-vancouver/" rel="nofollow">Social Networking, Visibility, and the Therapeutic Alliance: My Presentation at Mental Health Camp in Vancouver</a></abbr></em> I actually lean more towards the assumption that comments and participation should be confidential. Perhaps I say this as a psychologist who wants my clients to be cautious and conservative about their own self-care. :)

I recognize that the point of the conference is ending stigma, but I think it would be hard for many people to relax, share ideas, and get what they need from attending this conference if the default assumption is that all participation will be shared publicly on the net.

I think it would be lovely if there were some easy way to easily “opt in,” or “opt out,” in terms of letting folks know how you feel about being quoted. Something along the lines of name tag color. Choosing to wear a red name tag would mean, “Do not quote me on the web at all.” Green name tag could mean, “Please feel free to attach my name to any blogging you do about this panel.” I suppose there could also be a Yellow name tag for, “Please check with me before you publish my name.”

This would also make it easy for people to opt in or opt out for different panels and topics and puts the power solely in their own hands to identify how they feel about it (assuming all play along).

What do people think of this?

Keely Kolmes’s last blog post..Social Networking, Visibility, and the Therapeutic Alliance: My Presentation at Mental Health Camp in Vancouver

]]> By: rudy kehler http://www.mentalhealthcamp.org/confidentiality-anonymity-privacy/comment-page-1/#comment-244 rudy kehler Mon, 20 Apr 2009 05:51:14 +0000 http://www.mentalhealthcamp.org/?p=77#comment-244 A social media topical event and privacy, anonymity. Hmmm, tricky that. Adrienne has good thoughts on this. It would seem to me that an awareness statement to all attendees indicating that the event by its very nature will probably be shared electronically both during and post-event. Quite a lot of energy could be (mis)spent on ensuring that anonymity is preserved for those requesting it. What would the oops-public-disclosure-happened follow up plan be? Any liability issues, if you have provided assurances re privacy/anonymity? Just thinking out loud. Wish I could be there - have commitments already. smiles, rudy A social media topical event and privacy, anonymity. Hmmm, tricky that. Adrienne has good thoughts on this. It would seem to me that an awareness statement to all attendees indicating that the event by its very nature will probably be shared electronically both during and post-event.
Quite a lot of energy could be (mis)spent on ensuring that anonymity is preserved for those requesting it. What would the oops-public-disclosure-happened follow up plan be? Any liability issues, if you have provided assurances re privacy/anonymity?

Just thinking out loud. Wish I could be there – have commitments already.
smiles,
rudy

]]> By: Adrienne http://www.mentalhealthcamp.org/confidentiality-anonymity-privacy/comment-page-1/#comment-243 Adrienne Mon, 20 Apr 2009 04:59:20 +0000 http://www.mentalhealthcamp.org/?p=77#comment-243 You know, I think this almost goes too far. It sounds like there may be clamouring media types all over the place. I hope it doesn't scare anyone away. I don't think there should be a de facto expectation of anonymity though. That's part of what coming together as a group is. One doesn't have to share his/her story/diagnosis. I, for one, expect respect. I don't expect - or even want - anonymity. But attendees are different from presenters. Anything an attendee wants to share via a question or over coffee is completely under his/her control. Attendees aren't expected to share. I also think that people have to realize that at any sort of conference/camp, it's about learning and exchanging ideas. I for one, will probably take some of the things I learn at #mentalhealthcamp and share them with others or maybe even blog about them. Just like I do at any other workshop/conference/camp etc... Just my two cents! You know, I think this almost goes too far. It sounds like there may be clamouring media types all over the place. I hope it doesn’t scare anyone away.

I don’t think there should be a de facto expectation of anonymity though. That’s part of what coming together as a group is. One doesn’t have to share his/her story/diagnosis. I, for one, expect respect. I don’t expect – or even want – anonymity. But attendees are different from presenters. Anything an attendee wants to share via a question or over coffee is completely under his/her control. Attendees aren’t expected to share. I also think that people have to realize that at any sort of conference/camp, it’s about learning and exchanging ideas. I for one, will probably take some of the things I learn at #mentalhealthcamp and share them with others or maybe even blog about them. Just like I do at any other workshop/conference/camp etc…

Just my two cents!

]]> By: moritherapy http://www.mentalhealthcamp.org/confidentiality-anonymity-privacy/comment-page-1/#comment-242 moritherapy Mon, 20 Apr 2009 03:54:15 +0000 http://www.mentalhealthcamp.org/?p=77#comment-242 A twitter comment from Pete Quily: We should talk about the last point right at registration as well. A twitter comment from Pete Quily: We should talk about the last point right at registration as well.

]]> By: Raul http://www.mentalhealthcamp.org/confidentiality-anonymity-privacy/comment-page-1/#comment-241 Raul Mon, 20 Apr 2009 03:47:18 +0000 http://www.mentalhealthcamp.org/?p=77#comment-241 Addendum to Isabella's great post - it would be VERY helpful if potential attendees mentioned potential concerns they might have with the issues mentioned above (or if commenters could mention potential concerns, even if they can't attend). <abbr><em>Raul’s last blog post..<a href="http://hummingbird604.com/2009/04/18/twitter-as-an-online-social-space-to-hang-out-virtually-and-enable-offline-interaction/" rel="nofollow">Twitter as an online social space to hang out virtually and enable offline interaction</a></abbr></em> Addendum to Isabella’s great post – it would be VERY helpful if potential attendees mentioned potential concerns they might have with the issues mentioned above (or if commenters could mention potential concerns, even if they can’t attend).

Raul’s last blog post..Twitter as an online social space to hang out virtually and enable offline interaction

]]> By: Pete Quily http://www.mentalhealthcamp.org/confidentiality-anonymity-privacy/comment-page-1/#comment-240 Pete Quily Mon, 20 Apr 2009 03:43:26 +0000 http://www.mentalhealthcamp.org/?p=77#comment-240 Well crafted Isabella. Maybe have some local podcaster audio record the other sessions that aren't video taped. It's also important for people to keep in mind that because someone attends MHC09 doesn't necessarily mean they have a MH condition, they may have a family member, friend or work colleague with one. <abbr><em>Pete Quily’s last blog post..<a href="http://adultaddstrengths.com/2009/04/19/john-scrivins-response-to-his-vancouver-sun-adult-adhd-article/" rel="nofollow">John Scrivin’s Response to His Vancouver Sun Adult ADHD Article</a></abbr></em> Well crafted Isabella. Maybe have some local podcaster audio record the other sessions that aren’t video taped.

It’s also important for people to keep in mind that because someone attends MHC09 doesn’t necessarily mean they have a MH condition, they may have a family member, friend or work colleague with one.

Pete Quily’s last blog post..John Scrivin’s Response to His Vancouver Sun Adult ADHD Article

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